ARD Meeting

We had Katie's ARD meeting earlier this week and found out she will be in a blended class. This is a class that is half special needs and half not-special needs. We also meet her teacher and we are both very excited for Katie.

Make-a-Wish approved Katie!!

We got the letter today. So now we have find out what Katie wants to do for her wish.

New Blog for Katie

Thad and I have decided to start a blog for Katie. As Katie progresses more in her disease, Niemann-Pick Type C ( NPC ), we are wanting to keep our friends and family informed on what's happening in her everyday life and to also have a record of all the cute things she says and does.

So here it goes...

For those of you who don't know, Katie has a rare genetic disease called NPC. Our son Andrew died from the same disease 4 years ago, he was 9 years old. Katie is doing really well. Our main concerns right now are her enlarged spleen and she's started to fall down a lot more.

Today we had an appointment with the mobility clinic at Children's Medical Center of Dallas. We are getting Katie a special needs stroller that tilts and collapses for easy storage in the car. She is also getting a car seat that will help support her head. We are also getting a blue rifton walker that we can strap her in so she won't fall. Also a bath chair that will make it easier to get her in and out of the bathtub ( for later). She is very excited about her new equipment and so are we.