Katie has been sick this weekend. She is running a fever, runny nose, coughing. Neither one of us is getting any sleep!! She is also having a very hard time walking. I am afraid we are getting closer to using her wheelchair on a more regular basis :-( ~Leah

I am dying from grief; my years are shortened by sadness. Misery has drained my strength; I am wasting away from within. But I am trusting you, O Lord, saying, "You are my God!" My future is in your hands--Psalm 31:10, 14-15.

This verse hits very close to home. I feel like I am dying, wasting away from within. I feel like most people are happy people who get sad sometimes. I feel like a sad person who gets happy sometimes. I look at Katie and see how sweet and funny she is and how much I love her and then thoughts of what is ahead for her interfere and it breaks my heart. How am I going to survive losing her? I don't know. I am having a very hard time trusting the Lord. ~Leah

New Year sucks

So....I hate all the talk about the New Year. This year will only get worse as Katie gets sicker. She is having a very hard time walking. She told me the other day "her legs are tired and hurt". She walks along the wall feeling with her hands so she won't fall but most of the time her legs just give out and she falls to the floor. I call her my baby giraffe because her legs remind me of a baby giraffe right after they are born. It's so different than Andrew because he was never able to tell us if something hurt or bothered him.