Thursday, July 23, 2009

ARD Meeting

We had Katie's ARD meeting earlier this week and found out she will be in a blended class. This is a class that is half special needs and half not-special needs. We also meet her teacher and we are both very excited for Katie.

Friday, July 17, 2009

Make-a-Wish approved Katie!!

We got the letter today. So now we have find out what Katie wants to do for her wish.

Thursday, July 9, 2009

New Blog for Katie

Thad and I have decided to start a blog for Katie. As Katie progresses more in her disease, Niemann-Pick Type C ( NPC ), we are wanting to keep our friends and family informed on what's happening in her everyday life and to also have a record of all the cute things she says and does.

So here it goes...

For those of you who don't know, Katie has a rare genetic disease called NPC. Our son Andrew died from the same disease 4 years ago, he was 9 years old. Katie is doing really well. Our main concerns right now are her enlarged spleen and she's started to fall down a lot more.

Today we had an appointment with the mobility clinic at Children's Medical Center of Dallas. We are getting Katie a special needs stroller that tilts and collapses for easy storage in the car. She is also getting a car seat that will help support her head. We are also getting a blue rifton walker that we can strap her in so she won't fall. Also a bath chair that will make it easier to get her in and out of the bathtub ( for later). She is very excited about her new equipment and so are we.